Rare Disease Day 2025
WHEN
The last day of February ever year.
WHAT
Rare Disease Day is a globally-coordinated, patient-led movement that raises awareness of rare diseases and their impact on the lives of the 300 million people living with them worldwide and their families.
The campaign works towards equity in:
social opportunity,
healthcare and,
access to diagnosis and therapies.
WHO
Everyone! The Rare Disease Day campaign brings together people living with rare diseases and their families, patient organisations, health professionals, researchers, institutions, drug developers, public health authorities, and policy makers. The more participants, the louder our voice!
Overarching purpose!
Rare Disease Day strives for equity for people living with a rare disease. This goal shapes our annual campaign, letting national partners focus on what’s most important in their country, like diagnosis, treatment, or social participation. Visit our website to learn more and how to adapt it locally.
Rare Disease Day 2025, aims to raise awareness and improve access to treatment and medical representation for the over 300 million people worldwide affected by rare diseases. This year’s campaign focuses on equity in healthcare, emphasizing the need for early diagnosis, research funding, and global collaboration to support patients and their families. Advocacy events, educational initiatives, and community-driven activities will take place across countries, highlighting personal stories and scientific advancements. By uniting policymakers, healthcare professionals, and patient organizations, Rare Disease Day 2025 seeks to drive meaningful change and ensure that no one living with a rare disease is left behind.
Comment